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Jul 2018
Brain Cancer Survivor Praises Push for Treatment Breakthroughs
Published in General on July 16, 2018
 
                                                            Kaitlyn O’Kane has grown used to being exceptional. As a teenage cancer sufferer, she was already in an unenviable minority. But, despite now being cancer free, Kaitlyn has had to contend with ongoing side effects from the chemotherapy treatment. This includes permanent hair loss.
Recently, Kaitlyn came out in support of a new high-profile campaign to make more breakthroughs with regards to treating brain cancer. Speaking to 9NEWS, Kaitlyn, now 22, said:
“I have issues with my bladder, blood pressure, with my hands and fingers, with fertility and they all just seem to pop up.”
Diagnosis
Her diagnosis came at the tender age of just 13. She had no idea how dramatically her life would change after eight hours of surgery, followed by months of gruelling chemotherapy, that her body went through.
“I wasn't socialising and creating my own identity. I was a number in hospital and that was very traumatic,” she says.
Cancer Free
Nine years on, Kaitlyn is thankful to be cancer free, but she wishes that others could avoid the long-term side effects that now afflict her.
Each year, roughly 1935 Australians are diagnosed with some form of brain cancer. Brain cancer belongs to a group of cancers known for their low survival rates. It is alongside the pancreas, liver and lungs, with a 5-year survival rate of less than 30%.
Even though brain cancer diagnoses account for less than 20% of all cancer diagnoses, they are responsible for more than 40% of all cancer-related deaths. The reason, according to the chief executive of Cancer Council Victoria, Todd Harper, is that:
“There hasn't been the same level of investment. We want to encourage talented scientific researchers to have a career in this field.”
A New Initiative
The government of Victoria has set aside $12 million to cover the costs of fast-tracking certain procedures, such as colonoscopies, as well as improving screening for bowel cancer. Demand for colonoscopies is rising sharply across Australia due to an ageing population and increased screening from the Commonwealth’s National Bowel Cancer Screening Program putting pressure on our hospitals. Victorian public hospitals have experienced a 23 per cent increase in demand for colonoscopies between 2014-15 and 2016-17, when more than 54,000 colonoscopies were performed in Victorian public hospitals.
“It might be things like clinical trials, it might be straight scientific research so we can prevent, better treat and ultimately save lives,” said the Health Minister Jill Henessey.
Kaitlyn is now pursuing a career in psychiatry. She hopes to be able to help cancer sufferers like herself through a traumatic time.
“My future is shaped the way I want it to be, even with the barriers,” said Kaitlyn.
 
                                                                                     
                                                                                     
                                                                                     
                                                                                     
                                                                                     
                                                                                     
                                                                                     
                                                                                    ![“Surprise Noises Can Feel Like Pain”: New Airport Rule Eases Travel for Autistic Passengers Emma Beardsley once dreaded going through airport security. “I used to panic every time they made me take my headphones off at security,” she recalls. “The noise and the unpredictability can be overwhelming.” Now, thanks to a new policy allowing noise-cancelling headphones to remain on during security checks, Beardsley says she can “travel more confidently and safely.”
In Australia, one in four people lives with a disability, yet the travel system has often failed to accommodate varied needs. Autism-inclusion advocates at Aspect Autism Friendly have welcomed the government’s updated guidelines that let autistic travellers keep their noise-reducing headphones on during screening, calling it a “major step” toward more accessible air travel.
Dr Tom Tutton, head of Aspect Autism Friendly, emphasises the significance of travel in people’s lives: it connects them with family, supports work and learning, and offers new experiences. But he notes the typical airport environment can be especially intense for autistic travellers:
“Airports are busy, noisy, random and quite confusing places … you’ve got renovations, food courts, blenders, coffee grinders, trolleys clattering … and constant security announcements. It’s really, really overwhelming.”
“What might be an irritation for me is something that would absolutely destroy my colleague [who has autism]. Surprise noises of a certain tone or volume can genuinely be experienced as painful.”
Under the new policy — now published on the Australian Government’s Department of Home Affairs website — passengers who rely on noise-cancelling headphones as a disability support may request to wear them through body scanners. The headphones may undergo secondary inspection instead of being forcibly removed.
Dr Tutton describes this adjustment as small in procedure but huge in impact: it removes a key point of sensory distress at a critical moment in the journey. Aspect Autism Friendly is collaborating with airports to ensure that all security staff are informed of the change.
For many autistic travellers, headphones aren’t just optional — they are essential to navigating loud, unpredictable environments. Until now, being required to remove them during security has caused distress or even deterred travel.
Aspect Autism Friendly also works directly with airports, offering staff training, autism-friendly audits, visual stories, sensory maps, and other accommodations. Their prior collaborations include autism-friendly initiatives with Qantas. Dr Tutton notes:
“Airports have become this big focus for us of trying to make that little bit of travel easier and better.”
He advises people planning trips for travellers with disabilities to consult airport websites ahead of time. Some airports already offer quiet rooms or sensory zones — Adelaide, for instance, provides spaces where travellers can step away from the noise and regroup before boarding.
Beyond helping autistic individuals, Dr Tutton believes that more accessible airports benefit everyone. “These supports help lots of other people too,” he says. “When people are more patient, kind and supportive, the benefits flow to everyone. We all prefer environments that are well-structured, sensory-friendly, predictable and easy to navigate.”](https://c3eeedc15c0611d84c18-6d9497f165d09befa49b878e755ba3c4.ssl.cf4.rackcdn.com/photos/blogs/article-1061-1759742013.jpg) 
                                                                                    