04
Oct 2018
Lymphoma and Myeloma Treatments to be Subsided Through $48M PBS Listing
Published in General on October 04, 2018
 
                                                            More affordable drugs for Australians living with blood cancer are on the way thanks to the Federal Government’s recent announcement of $48 million in funding.
The Leukaemia Foundation is now celebrating the gift of greater funding, which will benefit around 700 people living with advanced follicular lymphoma. In reference to the new Pharmaceutical Benefits Scheme (PBS), CEO Bill Petch said, “Placing Gazyva on the PBS will mean people living with this disease will now pay $39.50 per script, or $6.40 for concession card holders, instead of paying around $104,000 a year.”
The price people are paying for their medication will be greatly reduced, making it more affordable in their daily lives. Mr. Petch goes on to say that “Recent global trials into the effectiveness of Gazyva showed the treatment can improve remission rates substantially” and that “Experts are hoping that improved remission rates is now translating into better cure rates.”
More people living with the disease will soon be able to access the drug at a subsidised price as the drug Pomalyst has been granted an extended listing for people living with multiple myeloma. Previously Pomalyst cost patients around $58,500 per year, limiting people’s access to the drugs they need to improve their condition.
According to Mr. Petch, “Access to these drugs will vastly improve the access and potential outcomes for Australians living with these diseases.” The PBS listing will provide the access people need to improved medical treatments. As Mr. Petch goes on to say, “Without PBS listings many people living with advanced follicular lymphoma and multiple myeloma would simply not be able to afford these improved treatments.”
Access to these latest medicines will be vital to efforts to improve remission rates in these diseases, which will work towards saving many more lives. The Leukaemia Foundation remains committed to gaining this access, seeking to improve treatment to all types of blood cancers.
Did you know? The Alfred Hospital’s Acute Leukaemia Research Group focuses on several haematopoietic transcription factors recurrently mutated in acute lymphoblastic and myeloid leukemias (ALL and AML) and their role in tumour suppressor gene function. The laboratory also uses leukaemias derived from mouse models to screen for genes critical to leukaemia maintenance, which represent potential novel drug targets.
 
                                                                                     
                                                                                     
                                                                                     
                                                                                     
                                                                                     
                                                                                     
                                                                                     
                                                                                    ![“Surprise Noises Can Feel Like Pain”: New Airport Rule Eases Travel for Autistic Passengers Emma Beardsley once dreaded going through airport security. “I used to panic every time they made me take my headphones off at security,” she recalls. “The noise and the unpredictability can be overwhelming.” Now, thanks to a new policy allowing noise-cancelling headphones to remain on during security checks, Beardsley says she can “travel more confidently and safely.”
In Australia, one in four people lives with a disability, yet the travel system has often failed to accommodate varied needs. Autism-inclusion advocates at Aspect Autism Friendly have welcomed the government’s updated guidelines that let autistic travellers keep their noise-reducing headphones on during screening, calling it a “major step” toward more accessible air travel.
Dr Tom Tutton, head of Aspect Autism Friendly, emphasises the significance of travel in people’s lives: it connects them with family, supports work and learning, and offers new experiences. But he notes the typical airport environment can be especially intense for autistic travellers:
“Airports are busy, noisy, random and quite confusing places … you’ve got renovations, food courts, blenders, coffee grinders, trolleys clattering … and constant security announcements. It’s really, really overwhelming.”
“What might be an irritation for me is something that would absolutely destroy my colleague [who has autism]. Surprise noises of a certain tone or volume can genuinely be experienced as painful.”
Under the new policy — now published on the Australian Government’s Department of Home Affairs website — passengers who rely on noise-cancelling headphones as a disability support may request to wear them through body scanners. The headphones may undergo secondary inspection instead of being forcibly removed.
Dr Tutton describes this adjustment as small in procedure but huge in impact: it removes a key point of sensory distress at a critical moment in the journey. Aspect Autism Friendly is collaborating with airports to ensure that all security staff are informed of the change.
For many autistic travellers, headphones aren’t just optional — they are essential to navigating loud, unpredictable environments. Until now, being required to remove them during security has caused distress or even deterred travel.
Aspect Autism Friendly also works directly with airports, offering staff training, autism-friendly audits, visual stories, sensory maps, and other accommodations. Their prior collaborations include autism-friendly initiatives with Qantas. Dr Tutton notes:
“Airports have become this big focus for us of trying to make that little bit of travel easier and better.”
He advises people planning trips for travellers with disabilities to consult airport websites ahead of time. Some airports already offer quiet rooms or sensory zones — Adelaide, for instance, provides spaces where travellers can step away from the noise and regroup before boarding.
Beyond helping autistic individuals, Dr Tutton believes that more accessible airports benefit everyone. “These supports help lots of other people too,” he says. “When people are more patient, kind and supportive, the benefits flow to everyone. We all prefer environments that are well-structured, sensory-friendly, predictable and easy to navigate.”](https://c3eeedc15c0611d84c18-6d9497f165d09befa49b878e755ba3c4.ssl.cf4.rackcdn.com/photos/blogs/article-1061-1759742013.jpg) 
                                                                                    