21
Jan 2019
New package helps put perspective on hospital stays for people living with dementia
Published in General on January 21, 2019
 
                                                            More often than not, it’s difficult for healthcare providers caring for dementia patients to understand or even empathise with those inflicted with the disease. We often take our memory for granted and knowing what it’s like to be in a constant state of disorientation can be difficult to grasp for many which is unfortunate considering empathy is essential for caring for patients.
That’s why hospitals worldwide are ecstatic about the new training package created to help health care providers better understand and empathise with those suffering from dementia.
This “dementia toolkit” was helped funded by the Department of Social Services Aged Care Services Improvement and Healthy Ageing Grants Program before being created and distributed by Dementia Australia.
“This training package enables staff to put themselves in the shoes of a person living with dementia, and provides a greater understanding of how the condition might impact on an individual’s hospital experience,” says Susan McCarthy, the Executive Director of Client Services for Dementia Australia.
“Through the use of simulation and debriefing exercises, we aim to inspire participants to adopt a more sensitive, informed and considered practice leading to a more positive experience for the person living with dementia, their families and carers, as well as for the staff who work with them.”
Dementia patients bring along with them dynamic challenges that vary from person to person. McCarthy hopes that this package might provide medical staff with the appropriate tools to understand and empathise with dementia patients in a hospital setting.
The package contains a number of training exercises and information regarding the essentials of a person-centered style of caring and comprehending the meaning of different behavioral responses exhibited by dementia patients.
The hospital setting can be disorienting for dementia patients as they might not be able to remember how they got there in the first place, creating an intense sense of disorientation that easily compromises compliance and the ability for medical staff to provide assistance.
The package used a plethora of real-life experiences as told by numerous families, caretakers, and nurses who deal with sufferers of dementia on a regular basis. It was imperative that the package encapsulated the realities of caring for these patients in a hospital setting.
McCarthy says it’s gone off without a hitch, being thoroughly tested by pilot workshops and educators from all across Local Health Districts of New South Wales.
Along with simulation resources, a participant handbook, and a facilitator guide, the package shows promise for promoting quality care for dementia sufferers across the nation. The package is free for download and is available for all hospitals in the nation.
“We thank everyone who has been involved in the development of this training package and look forward to both patients and staff benefiting from the insights it provides,” remarks McCarthy.
 
                                                                                     
                                                                                     
                                                                                     
                                                                                     
                                                                                     
                                                                                     
                                                                                     
                                                                                    ![“Surprise Noises Can Feel Like Pain”: New Airport Rule Eases Travel for Autistic Passengers Emma Beardsley once dreaded going through airport security. “I used to panic every time they made me take my headphones off at security,” she recalls. “The noise and the unpredictability can be overwhelming.” Now, thanks to a new policy allowing noise-cancelling headphones to remain on during security checks, Beardsley says she can “travel more confidently and safely.”
In Australia, one in four people lives with a disability, yet the travel system has often failed to accommodate varied needs. Autism-inclusion advocates at Aspect Autism Friendly have welcomed the government’s updated guidelines that let autistic travellers keep their noise-reducing headphones on during screening, calling it a “major step” toward more accessible air travel.
Dr Tom Tutton, head of Aspect Autism Friendly, emphasises the significance of travel in people’s lives: it connects them with family, supports work and learning, and offers new experiences. But he notes the typical airport environment can be especially intense for autistic travellers:
“Airports are busy, noisy, random and quite confusing places … you’ve got renovations, food courts, blenders, coffee grinders, trolleys clattering … and constant security announcements. It’s really, really overwhelming.”
“What might be an irritation for me is something that would absolutely destroy my colleague [who has autism]. Surprise noises of a certain tone or volume can genuinely be experienced as painful.”
Under the new policy — now published on the Australian Government’s Department of Home Affairs website — passengers who rely on noise-cancelling headphones as a disability support may request to wear them through body scanners. The headphones may undergo secondary inspection instead of being forcibly removed.
Dr Tutton describes this adjustment as small in procedure but huge in impact: it removes a key point of sensory distress at a critical moment in the journey. Aspect Autism Friendly is collaborating with airports to ensure that all security staff are informed of the change.
For many autistic travellers, headphones aren’t just optional — they are essential to navigating loud, unpredictable environments. Until now, being required to remove them during security has caused distress or even deterred travel.
Aspect Autism Friendly also works directly with airports, offering staff training, autism-friendly audits, visual stories, sensory maps, and other accommodations. Their prior collaborations include autism-friendly initiatives with Qantas. Dr Tutton notes:
“Airports have become this big focus for us of trying to make that little bit of travel easier and better.”
He advises people planning trips for travellers with disabilities to consult airport websites ahead of time. Some airports already offer quiet rooms or sensory zones — Adelaide, for instance, provides spaces where travellers can step away from the noise and regroup before boarding.
Beyond helping autistic individuals, Dr Tutton believes that more accessible airports benefit everyone. “These supports help lots of other people too,” he says. “When people are more patient, kind and supportive, the benefits flow to everyone. We all prefer environments that are well-structured, sensory-friendly, predictable and easy to navigate.”](https://c3eeedc15c0611d84c18-6d9497f165d09befa49b878e755ba3c4.ssl.cf4.rackcdn.com/photos/blogs/article-1061-1759742013.jpg) 
                                                                                    